Overview
Finding the right specialist for Small Fiber Neuropathy can be challenging
because many doctors are not familiar with this condition. SFN is often
misdiagnosed or overlooked, so it's important to work with healthcare
providers who have specific experience with small fiber neuropathy and
understand the latest diagnostic techniques.
The best specialists for SFN are typically neurologists who focus on
peripheral neuropathy or autonomic disorders. Some pain management
specialists and rheumatologists may also be knowledgeable about SFN,
especially when it's related to autoimmune conditions.
Getting an accurate diagnosis and proper treatment often requires seeing
a specialist who stays current with SFN research and has access to the right
diagnostic tools, like skin biopsy capabilities and autonomic function testing.
Don't be discouraged if you need to travel or wait to see the right doctor.
What to Look For
When searching for a specialist, look for doctors who have specific
experience with small fiber neuropathy and peripheral nerve disorders.
The right specialist should be familiar with current diagnostic criteria
and treatment options for SFN.
- Board certification in neurology, with subspecialty training in peripheral neuropathy or autonomic disorders
- Experience with skin biopsy for intraepidermal nerve fiber density testing
- Access to autonomic function testing like QSART and tilt table testing
- Knowledge of current SFN research and treatment protocols
- Willingness to work with other specialists for comprehensive care
- Experience with autoimmune causes of neuropathy if relevant to your case
- Understanding of both the sensory and autonomic aspects of small fiber neuropathy
- Familiarity with less common causes of SFN beyond diabetes
Look for doctors affiliated with major medical centers or universities,
as they often have more experience with rare conditions like SFN. Academic
medical centers typically have the specialized testing equipment needed
for proper diagnosis and may be involved in research that could benefit you.
Don't hesitate to ask potential doctors about their experience with SFN
during your initial consultation. A good specialist should be able to discuss
diagnostic criteria, explain testing procedures, and outline treatment options
specific to small fiber neuropathy.
Approved Specialists
The following specialists have demonstrated expertise in Small Fiber
Neuropathy and related conditions. They are recognized leaders in the field
who stay current with the latest research and treatment approaches.
Dr. Oaklander is widely recognized as one of the world's leading experts
on Small Fiber Neuropathy. She is a Professor of Neurology at Harvard Medical
School and Director of the Nerve Injury Unit at Massachusetts General Hospital.
Her research has been instrumental in advancing our understanding of SFN,
particularly autoimmune causes and the role of skin biopsy in diagnosis.
Dr. Zeidman is a neurologist specializing in peripheral neuropathy and
neuromuscular disorders. He has extensive experience diagnosing and treating
Small Fiber Neuropathy and is known for his thorough approach to finding
underlying causes. He stays current with the latest research and treatment
options for SFN patients.
Dr. Goodman is a neurologist who specializes in autonomic disorders and
dysautonomia. While his primary focus is on autonomic dysfunction, he has
significant experience with the autonomic aspects of Small Fiber Neuropathy.
This makes him particularly valuable for patients who have both sensory and
autonomic symptoms.
Preparing for Your Visit
Getting the most out of your specialist visit requires good preparation.
Since appointments with experts are often limited and may involve long wait
times, it's important to make the most of your time together.
Before your appointment, gather all relevant medical records, including
previous test results, imaging studies, and reports from other doctors.
Create a detailed timeline of your symptoms and any treatments you've tried.
This information will help the specialist understand your case quickly.
- Bring all previous test results, including blood work, nerve conduction studies, and any previous skin biopsies
- Create a detailed symptom diary noting when symptoms started, how they've progressed, and what makes them better or worse
- List all medications and supplements you've tried, including doses and how long you took them
- Write down your family medical history, including any relatives with neuropathy, diabetes, or autoimmune conditions
- Prepare a list of specific questions you want to ask about your diagnosis and treatment options
- Bring a list of all current medications, including over-the-counter drugs and supplements
- Consider bringing a family member or friend to help remember important information
- Be prepared to discuss how your symptoms affect your daily life and work
Don't be afraid to ask questions during your visit. Good specialists
welcome informed patients who want to understand their condition. Ask about
the doctor's experience with SFN, what tests they recommend, and what
treatment options are available for your specific situation.
Remember that finding the right diagnosis and treatment for SFN often
takes time. Be prepared for the possibility of additional testing and follow-up
visits. The investment in seeing an experienced specialist is usually worth
it for getting proper care and avoiding years of misdiagnosis.
Written by the SFN Foundation
August 22, 2025
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