Privacy Policy
Overview
The SFN Foundation is committed to protecting your privacy and personal
information. This Privacy Policy explains how we collect, use, and protect
information when you visit our website or participate in our support community.
We understand that health information is particularly sensitive, and we take
extra care to protect your privacy.
This policy applies to our website and any services we provide through
our platform. By using our website or participating in our community, you
agree to the terms outlined in this Privacy Policy. We may update this policy
from time to time, and we will notify you of any significant changes.
Last updated: August 22, 2025
Information We Collect
We collect information in several ways when you interact with our website
and services. The types of information we collect depend on how you choose
to interact with our platform.
Information you provide directly includes any details you share when
contacting us, joining our support group, or participating in our community.
This might include your name, email address, and any health-related information
you choose to share in our support forums or with our team.
Automatically collected information includes standard web data such as
your IP address, browser type, device information, and pages visited on our
website. This information helps us understand how people use our site and
improve the user experience.
Third-party platform information may be collected if you participate
in our Discord support group or interact with us through social media platforms.
These platforms have their own privacy policies that govern how they handle
your information.
How We Use Information
We use the information we collect to provide and improve our services,
communicate with you, and support our mission of helping people with Small
Fiber Neuropathy. We never sell your personal information to third parties.
Website improvement efforts use aggregated, non-identifying data to
understand how visitors use our site, which pages are most helpful, and
where we can make improvements. This helps us create better resources for
the SFN community.
Communication purposes include responding to your questions, providing
updates about our services, and sharing relevant information about Small
Fiber Neuropathy. We only send communications that we believe will be valuable
to you, and you can always opt out of non-essential communications.
Community support activities may involve moderating our support groups,
ensuring member safety, and facilitating helpful connections between community
members. Any health information you share in our support community is used
only to provide peer support and connect you with relevant resources.
Information Sharing
We do not sell, rent, or trade your personal information to third parties.
We share information only in limited circumstances that support our mission
or are required by law.
Service providers who help us operate our website and services may have
access to certain information, but they are bound by confidentiality agreements
and are not permitted to use your information for their own purposes. These
might include website hosting services, email providers, or security services.
Legal requirements may occasionally require us to share information if
we receive a valid legal request, such as a court order or subpoena. We will
only share the minimum information necessary to comply with legal obligations.
Emergency situations where we believe sharing information is necessary
to prevent serious harm to someone's health or safety may require information
sharing. This would only occur in rare circumstances and with appropriate
safeguards.
Research purposes may involve sharing aggregated, de-identified data
with researchers studying Small Fiber Neuropathy, but only with your explicit
consent and never in a way that could identify you personally.
Data Security
We take data security seriously and implement appropriate technical and
organizational measures to protect your personal information from unauthorized
access, alteration, disclosure, or destruction.
Technical safeguards include encryption of data transmission, secure
server hosting, regular security updates, and access controls that limit
who can view personal information. We work with reputable service providers
who maintain high security standards.
Organizational measures include training our team members on privacy
best practices, limiting access to personal information to only those who
need it for their work, and regular reviews of our privacy and security practices.
While we strive to protect your information, no internet transmission
or electronic storage is completely secure. We cannot guarantee absolute
security, but we are committed to protecting your information using industry-standard
practices and continuously improving our security measures.
Your Rights
You have several rights regarding your personal information, and we
are committed to helping you exercise these rights in accordance with applicable
privacy laws.
Access rights allow you to request information about what personal data
we have collected about you and how we use it. You can contact us at any
time to request this information.
Correction rights enable you to request that we correct any inaccurate
or incomplete personal information we have about you. We want to ensure our
records are accurate and up-to-date.
Deletion rights, also known as the "right to be forgotten," allow you
to request that we delete your personal information in certain circumstances.
We will honor such requests unless we have a legitimate reason to retain
the information.
Communication preferences can be managed at any time. You can opt out
of non-essential communications while still receiving important updates about
our services or your account.
Cookies and Analytics
Our website uses cookies and similar technologies to improve your browsing
experience and help us understand how our site is used. Cookies are small
text files stored on your device that help websites remember your preferences
and provide better functionality.
Essential cookies are necessary for our website to function properly
and cannot be disabled. These cookies enable basic features like page navigation
and access to secure areas of the website.
Analytics cookies help us understand how visitors interact with our
website by collecting and reporting information anonymously. This data helps
us improve our site structure, content, and user experience.
You can control cookie settings through your browser preferences. Most
browsers allow you to refuse cookies or alert you when cookies are being
sent. However, disabling certain cookies may affect your ability to use
some features of our website.
Changes to this Privacy Policy will be posted on our website with an
updated effective date. For significant changes that affect how we handle
your personal information, we will provide additional notice through email
or prominent website notifications.
Written by the SFN Foundation
August 22, 2025
Got Feedback or Ideas?
Share feedback, ideas, or information corrections in our quick anonymous survey to help improve the SFN Foundation website.
Google Form Survey